Response to Proposal for a REGULATION OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL on establishing the European Competitiveness Fund ('ECF’), including the specific programme for defence research and innovation activities, repealing Regulations (EU) 2021/522, (EU) 2021/694, (EU) 2021/697, (EU) 2021/783, repealing provisions of Regulations (EU) 2021/696, (EU) 2023/588, and amending Regulation (EU) [EDIP]

11 Nov 2025

Meeting with Martine Kemp (Member of the European Parliament)

14 Mar 2025 · échange sur la politique européeenne sur les maladies rares

Meeting with Isabel Wiseler-Lima (Member of the European Parliament) and EUROPEAN ORGANISATION FOR RARE DISEASES

5 Mar 2025 · Rare Disease Day

Meeting with Isabel Wiseler-Lima (Member of the European Parliament)

19 Jan 2024 · Législation pharmaceutique européenne

Response to Interim evaluation of the EU4Health Programme Regulation (EU) No 2021/522 - Report to the European Parliament, the Council, the European Economic and Social Committee and the Committee of the Regions on the interim evaluation of the EU4Health Programme

8 Jan 2024

Meeting with Marc Angel (Member of the European Parliament)

8 Dec 2023 · Révision de la législation pharmaceutique européenne

Response to Proposal for a DIRECTIVE OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL on the Union code relating to medicinal products for human use, and repealing Directive 2001/83/EC and Directive 2009/35/EC

20 Oct 2023

Meeting with Monica Semedo (Member of the European Parliament)

9 Oct 2023 · General discussion about the activities of ALAN and the situation of people with disabilities. European Disability Card came up in the discussion

Meeting with Nicolas Schmit (Commissioner) and 1 other attendee

7 Feb 2023 · La stratégie européenne en matière de soins, l'égalité en matière d'emploi et l'intégration des personnes atteintes d'une maladie rare