European Haemophilia Consortium

EHC

The European Haemophilia Consortium (EHC) is an international non-profit organisation representing 48 national patient organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe.

Links

Website Transparency Register Profile

ID: 786550013705-85

Lobbying Activity

Meeting with Tiemo Wölken (Member of the European Parliament, Shadow rapporteur) and BGP Products Operations GmbH – a Viatris Company

10 Apr 2025 · Critical Medicines Act

Meeting with Vytenis Povilas Andriukaitis (Member of the European Parliament)

10 Dec 2024 · EU health policy

Response to Proposal for a REGULATION OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL on standards of quality and safety for substances of human origin intended for human application and repealing Directives 2002/98/EC and 2004/23/EC

8 Sept 2022

Response to Proposal for an EP and Council Regulation on orphan and paediatric medicinal products

6 Jan 2021

Response to Revision of Directive 2002/98/EC on safety and quality of human blood and blood components and of Directive 2004/23/EC on safety and quality of human tissues and cells and their implementing acts.

14 Dec 2020

Response to Commission Communication on a Pharmaceutical Strategy- Ensuring sustainable innovation and the availability and affordability of medicines and medical technologies for citizens

6 Jul 2020