International Patient Organisation for Primary Immunodeficiencies
IPOPI
IPOPI is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency patients worldwide through global collaboration.
Lobbying Activity
Meeting with Ann-Sofie Ronnlund (Cabinet of Commissioner Ekaterina Zaharieva)
21 Nov 2025 · Life sciences
Response to Critical Medicines Act
27 Feb 2025
Meeting with Billy Kelleher (Member of the European Parliament)
9 Sept 2024 · Rare Disease Screening
Meeting with Stella Kyriakides (Commissioner) and
28 Sept 2023 · Meeting of Commissioner Kyriakides with newborn screening associations
Response to Commission Communication on the EU Strategic Framework for Global Health
16 Sept 2022
Meeting with Margaritis Schinas (Vice-President) and
8 Apr 2021 · Health Union