European Patients' Forum (EPF)

EPF

The European Patients’ Forum is a not-for-profit, independent umbrella organisation of patients’ organisations active in the field of European public health and health advocacy.

Lobbying Activity

Meeting with Maya Matthews (Head of Unit Health and Food Safety)

24 Nov 2025 · Discussion on EPF’s current activities and planned actions with respect to the Health Technology Assessment Regulation (HTAR) implementation

Meeting with Victor Negrescu (Member of the European Parliament)

21 Nov 2025 · Operating Grants in EU4Health

Meeting with Stine Bosse (Member of the European Parliament)

14 Nov 2025 · Pharmaceutical and healthcare policy

Meeting with András Tivadar Kulja (Member of the European Parliament)

5 Nov 2025 · European patients rights

Meeting with Victor Negrescu (Member of the European Parliament) and

4 Nov 2025 · EUROPA CONNECT - Health EU Summit

Meeting with Tiemo Wölken (Member of the European Parliament, Rapporteur)

15 Oct 2025 · Pharma Package

Meeting with Olivér Várhelyi (Commissioner) and

2 Oct 2025 · All pressing portfolio topics

Meeting with Stine Bosse (Member of the European Parliament)

15 Sept 2025 · General Pharmaceutical Legislation - patient representation

Meeting with Tiemo Wölken (Member of the European Parliament, Rapporteur)

1 Sept 2025 · Pharma Regulation

Meeting with Mohammed Chahim (Member of the European Parliament, Shadow rapporteur for opinion) and

25 Jun 2025 · Roundtable Critical Medicines Act

Meeting with Olivér Várhelyi (Commissioner) and

25 Jun 2025 · Ongoing policy developments

Meeting with Flora Giorgio (Head of Unit Health and Food Safety)

16 May 2025 · MDR/IVDR state of play and next steps.

Meeting with András Tivadar Kulja (Member of the European Parliament)

30 Apr 2025 · Workforce shortage, patient participation

Meeting with Marco La Marca (Cabinet of Commissioner Dubravka Šuica) and

29 Apr 2025 · Fertility

Meeting with Stine Bosse (Member of the European Parliament)

14 Mar 2025 · Setting up event on EU4Health and civil society

Meeting with Cynthia Ní Mhurchú (Member of the European Parliament)

6 Feb 2025 · Introduction meeting

Meeting with Vytenis Povilas Andriukaitis (Member of the European Parliament) and European Pain Federation EFIC

16 Oct 2024 · EU health policy

Meeting with Oihane Agirregoitia Martínez (Member of the European Parliament)

16 Oct 2024 · Política de saludo

Meeting with Pierre Jouvet (Member of the European Parliament) and France Assos Santé

15 Oct 2024 · Politiques de santé

Meeting with Stine Bosse (Member of the European Parliament, Committee chair)

4 Oct 2024 · European health policy

Meeting with Maria Noichl (Member of the European Parliament)

2 Oct 2024 · SRHR

Meeting with Stine Bosse (Member of the European Parliament, Committee chair) and Confederation of Danish Industry

26 Sept 2024 · European health policy

Meeting with András Tivadar Kulja (Member of the European Parliament)

20 Sept 2024 · European Patients Rights

Meeting with Adam Jarubas (Member of the European Parliament, Committee chair)

11 Sept 2024 · Preparatory call High-Level Policy Event - EPF

Meeting with Tiemo Wölken (Member of the European Parliament, Rapporteur) and GARDP Foundation

5 Mar 2024 · Revision of Pharmaceutical Package (staff level)

Meeting with Pernille Weiss-Ehler (Member of the European Parliament, Rapporteur)

23 Feb 2024 · Directive on Medicinal products for human use

Meeting with Tilly Metz (Member of the European Parliament, Shadow rapporteur) and European Society of Cardiology

23 Feb 2024 · Pharmaceutical legislation

Meeting with Adam Jarubas (Member of the European Parliament) and

31 Jan 2024 · EU pharmaceutical roundtable - the EU institutions’ representatives and the stakeholder's dialogue

Meeting with Pernille Weiss-Ehler (Member of the European Parliament, Rapporteur)

29 Jan 2024 · Directive on Medicinal products for human use

Meeting with Pernille Weiss-Ehler (Member of the European Parliament, Rapporteur)

8 Jan 2024 · Directive on Medicinal products for human use

Meeting with Peter Liese (Member of the European Parliament)

15 Nov 2023 · Austausch

Meeting with Laura Ballarín Cereza (Member of the European Parliament, Shadow rapporteur for opinion) and

23 Oct 2023 · Pharmaceutical Package (Regulation)

Meeting with Tilly Metz (Member of the European Parliament) and

10 Oct 2023 · Pharma Package

Meeting with Catherine Amalric (Member of the European Parliament, Shadow rapporteur)

25 Sept 2023 · Reform of the EU pharmaceutical legislation

Meeting with Kateřina Konečná (Member of the European Parliament, Shadow rapporteur)

22 Sept 2023 · Pharmaceutical package legislation

Meeting with Tomislav Sokol (Member of the European Parliament, Shadow rapporteur) and EuropaBio

20 Sept 2023 · Pharmaceutical legislation

Meeting with Margrete Auken (Member of the European Parliament, Shadow rapporteur)

18 Sept 2023 · Pharma legislation

Meeting with Tomislav Sokol (Member of the European Parliament, Rapporteur)

1 Sept 2023 · EHDS

Meeting with Pernille Weiss-Ehler (Member of the European Parliament, Rapporteur)

31 Aug 2023 · Directive on Medicinal products for human use

Meeting with Tiemo Wölken (Member of the European Parliament, Rapporteur)

19 Jul 2023 · Revision of the Pharmaceutical Legislation (staff level)

Meeting with Margaritis Schinas (Vice-President) and

6 Mar 2023 · Pharma Strategy

Meeting with Stella Kyriakides (Commissioner) and

6 Mar 2023 · Meeting to discuss the reform of EU pharmaceutical legislation

Meeting with Kateřina Konečná (Member of the European Parliament, Shadow rapporteur)

13 Jan 2023 · European Health Data Space

Meeting with Sara Cerdas (Member of the European Parliament, Shadow rapporteur) and GSK

5 Dec 2022 · Espaço Europeu de Dados de Saúde

Meeting with Tomislav Sokol (Member of the European Parliament, Rapporteur) and Align Technology, Inc.

1 Dec 2022 · European Health Data Space - EHDS

Meeting with Stella Kyriakides (Commissioner) and

21 Sept 2022 · Rare diseases

Meeting with Ralf Kuhne (Cabinet of Commissioner Stella Kyriakides)

25 May 2022 · VTC meeting - European Health Data Space – EPF Congress 2022

Meeting with Giorgos Rossides (Cabinet of Commissioner Stella Kyriakides) and

25 Nov 2021 · Follow up to Cssr Kyriakides’ meeting with CSOs on 25/10/2021 on civil society funding through EU4Health

Meeting with Stella Kyriakides (Commissioner) and

25 Oct 2021 · VTC Meeting: EU4Health Work Programme 2022 and operating grants.

Meeting with Stella Kyriakides (Commissioner) and

30 Jul 2021 · Meeting with civil society representatives regarding the EU4health programme.

Meeting with Margaritis Schinas (Vice-President) and

16 Jun 2021 · Supply chains for medicines

Meeting with Margaritis Schinas (Vice-President) and

8 Apr 2021 · Health Union

Meeting with Thierry Breton (Commissioner) and

16 Feb 2021 · Pact for Skills roundtable with the representatives of the health sector

Meeting with Nicolas Schmit (Commissioner) and

16 Feb 2021 · Pact for Skills roundtable with the representatives of the health sector.

Meeting with Stella Kyriakides (Commissioner)

26 Jun 2020 · VC meeting: Exchange of views on the forthcoming Pharmaceutical Strategy

Meeting with Stella Kyriakides (Commissioner) and

29 May 2020 · Video call with Pharmaceutical Industrial Associations, the European Medicines Agency and the European Centre for Disease Prevention and Control, to discuss Possible shortages of medicines and medical devices for the Covid-19 outbreak

Meeting with Stella Kyriakides (Commissioner)

7 May 2020 · VC meeting on EU's Cancer Plan and challenges of patients with chronic diseases during COVID-19

Meeting with Stella Kyriakides (Commissioner) and

7 Jan 2020 · Discussion on cancer

Meeting with Vytenis Andriukaitis (Commissioner) and

13 Nov 2019 · Patient involvement as a path towards more effective health systems

Meeting with Anne Bucher (Director-General Health and Food Safety)

12 Nov 2019 · participation in high level forum

Meeting with Anne Bucher (Director-General Health and Food Safety)

11 Nov 2019 · To give a speech at the give to contribute to the opening Plenary Session of EPF Congress “Advancing Meaningful Patient Involvement – A path to effective health systems”.

Meeting with Vytenis Andriukaitis (Commissioner) and

9 Oct 2019 · Discussion on the future of the EPF cooperation with the Commission

Meeting with Anne Bucher (Director-General Health and Food Safety)

28 Mar 2019 · discussion on EMA’s strong commitment to patient engagement

Meeting with Xavier Prats Monné (Director-General Health and Food Safety)

23 May 2018 · Discussion about collaboration with Sante

Meeting with Vytenis Andriukaitis (Commissioner) and

15 May 2018 · HTA

Meeting with Xavier Prats Monné (Director-General Health and Food Safety)

17 Jan 2018 · Discussion on the future cooperation with DG SANTE

Meeting with Vytenis Andriukaitis (Commissioner) and

12 May 2017 · Sustainable Development Goals, EPF ‘s campaign on this issue and the Social Pillar

Meeting with Xavier Prats Monné (Director-General Health and Food Safety)

27 Sept 2016 · To discuss different issues: public health programme, chronic diseases

Meeting with Annika Nowak (Cabinet of Commissioner Vytenis Andriukaitis) and European Critical Care Foundation

25 Apr 2016 · Cooperation in the area of acute care

Meeting with Vytenis Andriukaitis (Commissioner) and

28 Jan 2015 · Health system performance assesment